Families come from near and far to UCSF Children's Hospital for a bone marrow transplant. There are many resources available to assist families during this time. Our social worker is available to answer any questions about resources and to help assist in accessing them. The bone marrow transplant team strives to make the bone marrow transplant process as easy as possible for families.
Listed below are some organizations and resources that may be helpful to you depending upon your situation. For information on places to stay, eat and other issues during your child's hospital stay, please visit the Patient Guide section.
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American Brain Tumor Association -- Source for information about brain tumors, treatment options, clinical trials and living with a brain tumor
(800) 886-2282
www.abta.org
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American Cancer Society -- A nationwide, community- based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy and service
(800) 227-2545
www.cancer.org
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Aplastic Anemia Foundation of America -- Fighting bone marrow diseases through patient support and research
(800) 747-2820
www.aplastic.org
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Blood and Marrow Transplant Information Network (BMT InfoNet) -- Includes publications, emotional support and links to other organizations for patients and families
(888) 597-7674
www.bmtinfonet.org
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Blood and Marrow Transplant Newsletter -- A quarterly newsletter for bone marrow, peripheral blood stem cell and cord blood transplant patients and survivors
(847) 433-3313 or (888) 597-7674
www.bmtnews.org
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The Bone Marrow Foundation -- Provides resources, information, programs and services about bone marrow/stem cell transplantation for patients, family members, friends, bone marrow donors and health care professionals
(800) 365-1336
www.bonemarrow.org
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CancerCare, Inc.
(212) 302-2400
CancerCare Counseling Line -- (800) 813-HOPE (4673)
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Candlelighters Childhood Cancer Foundation -- A national non-profit membership organization whose mission is to educate, support, serve and advocate for families of children with cancer, survivors of childhood cancer and the professionals who care for them
(800) 366-2223
www.candlelighters.org
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Coping Magazine
(615) 790-2400
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Fanconi's Anemia Research Fund, Inc. -- Working to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide
(541) 687-4658
www.fanconi.org
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CureSearch -- A COG-sponsored resource for patients, parents, and family facing childhood cancer as well as survivors of childhood cancer.
www.curesearch.org
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Histiocytosis Association of America
(800) 548-2758
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Immune Deficiency Foundation -- Dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education
(800) 296-4433
www.primaryimmune.org
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Kids Cancer Network -- Includes Funletters, an activities letter for kids and families living with cancer
(805) 693-1017
www.kidscancernetwork.org
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Leukemia and Lymphoma Society -- The world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services
(800) 955-4572 or (212) 573-8484
www.leukemia-lymphoma.org
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MPS Society -- Working to find a cure for MPS and ML disorders by supporting research, providing support to individuals and their families affected by an MPS or ML disease, promoting public and professional awareness and significantly increasing participation by regions
(610) 942-0100
www.mpssociety.org
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Make-A-Wish Foundation -- Grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy
(800) 722-9474
www.wish.org
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National Bone Marrow Transplant Link
(800) 546-5268
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National Brain Tumor Foundation -- Offers information about brain tumors and treatment, brain tumor medical centers, the latest brain tumor clinical trials as well as a network of brain tumor survivors
(800) 934-CURE (2873)
www.braintumor.org
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National Children's Cancer Society -- Improves the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services and education
(800) 5-FAMILY
www.children-cancer.com
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National Marrow Donor Program -- Facilitates life-saving blood stem cell transplants for patients who do not have a donor in their family
(800) 627-7692
www.marrow.org
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National Organization for Rare Disorders (NORD) -- A unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them
(800) 999-NORD (6673)
www.rarediseases.org
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The Okizu Foundation -- Offers camps for children with cancer and their families
(415) 382-9083
www.okizu.org
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The Robert Louie Support Group -- Offers support groups for children with cancer and their families
(415) 775-5921
