Heart Care | Abnormal Heart Rhythm | Implantable Cardioverter Defibrillators (ICDs)

If your child is prone to life-threatening rapid heart rhythms, your doctor may suggest that they have a medical device called an implantable cardioverter defibrillator (ICD) implanted. While not a cure for dangerously fast heart rhythms, an ICD provides treatment for this condition by constantly monitoring the heart pattern, which may prevent cardiac arrest.

Developed in the 1980's, an ICD senses when the heart is beating too fast and delivers a brief jolt of energy directly to the heart to restore a normal heart rhythm. An ICD can also pace the heart when the heart rhythm is too slow or assist the heart in beating in a regular fashion. When the ICD assists the heart in any way, the information is recorded in the device's memory, allowing your childs doctor or nurse to review it any time.

An ICD is the size of a pager and consists of a lightweight metal case that encloses a battery and computer circuitry. The device monitors the heart rhythm constantly via one or two leads, which are flexible wires placed in the heart and connected to the ICD. An ICD is most commonly placed under the skin in the upper chest during a surgical procedure called an implantation.

Plan to arrive early the morning of the procedure. You will be contacted and instructed about the specific time you and your child need to arrive at the hospital. Please be prepared to spend one night in the hospital.

We recommend that you contact our Child Life Services department to help prepare your child for his or her hospital experience. By preparing your child for the procedure and listening to your child's feelings, you can help your child know what to expect and lessen his or her fears.

A general anesthesia will be given to your child so he or she can't eat or drink anything for eight hours before the ICD surgery. Your doctor will tell you exactly when your child should stop eating solid foods and drinking clear liquids. It is extremely important that your child have an empty stomach before receiving sedation for the procedure.

If your child appears ill, has a fever, cold, cough, vomiting, diarrhea, diaper rash or has recently been exposed to chicken pox, the ICD procedure may be postponed. Please call your doctor's office prior to the scheduled procedure date to discuss any symptoms your child may have.

Before the procedure, a nurse will check your child's temperature, pulse rate and blood pressure and will give your child pajamas to wear while in the hospital.

Sedation will be given to your child before and during the ICD surgery. During the ICD implantation, you will be given a pager so that we can easily reach you.

Depending on your child's age, size and the type of ICD to be implanted, the procedure will be done either in the operating room or in a special laboratory with X-ray cameras. The procedure usually takes four to six hours.

All of the people in the room will be dressed in scrub suits, masks and hats. The area where the ICD will be implanted will be washed with a yellow antiseptic soap. Your child will be covered with sterile drapes. He or she will have general anesthesia to insure comfort. In addition, the doctor will inject a local anesthetic to numb the area where the ICD will be implanted. Nurses and doctors will closely monitor your child at all times.

The ICD is made of two main parts -- the leads and the generator. The leads are thin wires that connect the heart with the generator. The leads can be attached to the surface of the heart or passed through a vein inside the heart. The lead is then attached to the generator. The generator is a small metal case that includes a battery and a microcomputer, which is the "brain" of the ICD. The generator is sutured under the skin in the upper chest.

At the end of the procedure, sutures are placed under the skin to seal the wound and a dressing placed over the wound. The sutures will be absorbed as the wound heals.

After the ICD is implanted, your child will return to his or her room and may feel sleepy for several hours. He or she will be asked to lie in bed for four to six hours. When awake, your child can drink clear liquids and later have something to eat. In most cases, your child will return home the following morning.

Prior to leaving the hospital, you'll receive a temporary identification card that contains important information about the model and serial number of your child's ICD. Within a few months, you'll receive a permanent card in the mail from the device manufacturer. This card should be kept with you and your child at all times.

Before you and your child go home, please make sure you receive the following materials from your childs doctor or nurse:

Please adhere to the following instructions to ensure your child has a smooth recovery.

Your child's dressing may be removed the following day after he or she returns home. Beneath the dressing are small pieces of tape, called steri-strips. These will fall off in one to two weeks. Absorbable sutures are located beneath the skin and do not need to be removed.

The best treatment is to keep the wound clean and dry. No ointments or creams should be used. Sponge baths are allowed, but the ICD site should be kept dry. Two weeks after the procedure or as soon as the skin incision heals, your child will be allowed to shower.

Although your child will be given antibiotics during and after the procedure, it is important to watch for signs of infection. These signs include redness, swelling, increased pain, drainage or fever. If these occur, please notify your child's doctor immediately.

Before leaving the hospital, discuss your child's activity restrictions with your doctor. For ICDs implanted in the chest, your child must avoid lifting his or her arm over their head on the side where the ICD is implanted for two to four weeks.

Microwave ovens and other appliances that are in good repair will not interfere with your child's ICD. Computers, hair dryers, power tools, radios, televisions, stereos, electric blankets and cars also won't interfere with an ICD.

A few things, however, might cause interference. These include very strong magnets such as those used for MRI scans, heavy-duty electrical equipment such as arc welders and certain surgical instruments.

ICDs may set off a metal detector, such as those at airports. When traveling, your child may need to show a device identification card to security personnel.

Digital cell phones are unlikely to interfere with ICD function but avoid holding them directly over your child's ICD.

The manufacturer of your child's ICD is often a good source of information for patients and families. The toll-free number of the manufacturer should be listed on the back of the device identification card or you can visit their website.

Your child's first follow-up appointment should occur one to two weeks after the procedure. This appointment should be made with the Pediatric Heart Center at UCSF Children's Hospital or with your referring physician.

At the clinic appointment, the doctor and nurse will examine your child's wound and check the ICD settings. We encourage you to ask any questions you or your child may have concerning ICDs.

To make a follow-up appointment, please call:
Pediatric Heart Center (415) 353-2008

Please state that your child needs an ICD follow-up appointment. The clinic is held one day per week and is located at:

Pediatric Heart Center
400 Parnassus Ave.
Second Floor, Room A-2962
San Francisco, CA 94143

This information is for educational purposes only and is not intended to replace the advice of your doctor or health care provider. We encourage you to discuss with your doctor any questions or concerns you may have.