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Cystic Fibrosis Center

The UCSF Cystic Fibrosis Center, certified by the national Cystic Fibrosis Foundation (CFF), specializes in the diagnosis, management, treatment and research of cystic fibrosis.

Since many of our patients were diagnosed with cystic fibrosis as a child or teenager, we help them transition from pediatric to adult care. The Cystic Fibrosis Foundation recently reported that the median survival age for patients with cystic fibrosis is nearly 37 years. This means that half the patients with cystic fibrosis are living into their late 30s and beyond. Also, on average, research suggests that adherence to Cystic Fibrosis Foundation treatment guidelines increases a patient's life expectancy by 10 years.

We are committed to providing and organizing effective, evidence-based care for adults with cystic fibrosis; training providers of adult cystic fibrosis care; testing and implementing new treatments for cystic fibrosis; advancing the scientific understanding of cystic fibrosis and supporting the discovery of new drugs for the condition.

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We provide a team approach to care that includes medical and nursing cystic fibrosis specialists, who are supported by a respiratory therapist, registered dietitian and social worker specializing in cystic fibrosis.

Our Services

Our services include:

  • Comprehensive cystic fibrosis diagnosis including sweat testing and blood testing for all known mutations related to cystic fibrosis. By special arrangement, we also provide measurement of nasal potential differences.
  • Full range of treatments for all complications related to cystic fibrosis, including those involving the respiratory, digestive, endocrine and reproductive systems.
  • Management of cystic fibrosis lung disease, including mucus clearance techniques, mucolytics and preventive therapy for patients infected by pseudomonas.
  • Prenatal genetic counseling, screening and testing for cystic fibrosis at UCSF's Prenatal Diagnosis Center.
  • Comprehensive nutrition counseling and care, including pancreatic enzyme replacement therapy, screening for and repletion of vitamin deficiencies.
  • Cystic fibrosis education and counseling.

We also have our own research laboratory, where our team of experts is investigating cystic fibrosis, with the aim of better understanding the disease and developing new and improved treatments. Our patients have the opportunity to participate in clinical trials studying new therapies. In addition, we often collaborate in research studies with other Cystic Fibrosis Foundation-sponsored medical centers around the country.

Our center is also certified by the Genetically Handicapped Persons Program (GHPP), a state funded center that coordinates care and helps pay for medical costs of people with serious genetic diseases, such as cystic fibrosis.

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You'll need a referral from your primary care provider or specialist to make an appointment. Once you have the referral, please call the number below.

Getting Here

Cystic Fibrosis Center
400 Parnassus Ave., Fifth Floor
San Francisco, CA 94143-0359
Phone: (415) 353-2961
Fax: (415) 353-2568

Hours: Monday to Friday
8 a.m. – 5 p.m.

Access Your Health Information Online

This clinic uses UCSF MyChart, an online patient service. Message your provider, request medication refills, view some test results and more.

Learn more about UCSF MyChart

Research and Clinical Trials

Parking

Parking at Parnassus

Public parking for an hourly fee at UCSF Medical Center is available in the seven-level Millberry Union Garage at 500 Parnassus Ave. There are two garage entrances — one on the north side of Parnassus Avenue and another on Irving Street, just east of Third Avenue.

Another garage with an hourly fee, at 350 Parnassus Ave., is open Monday to Friday from 6 a.m. to 10 p.m.

Metered street parking is rarely available.

Patients being admitted to the hospital may be dropped off at the circular driveway leading to the main entrance at 505 Parnassus Ave. This area also may be used to pick up patients who are being discharged.

For more information about parking at Parnassus, call Campus Parking Services at 476-2566.

Valet Parking Service

Valet parking service is available at the Ambulatory Care Center (ACC) at 400 Parnassus Ave. from 8 a.m. to 3 p.m. The valet service is free but patients must pay regular parking fees. For more information about the valet service, call (415) 476-6200.

A UCSF "greeter" also is available at the ACC from 8 a.m. to 5 p.m. to assist patients find their way.

Public Transportation

Parnassus

UCSF Medical Center is accessible via Muni streetcar line N-Judah*, which stops at Second Avenue and Irving Street, and the following Muni bus lines, which stop in front of the hospital:

  • 43-Masonic*
  • 6-Parnassus

For more information about Muni visit, www.sfmuni.com.

* Wheelchair accessible bus routes

Related Information

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Clinics & Centers

Clinic Team

Diana Dawson
Diana Dawson,
pediatric nurse practitioner
Monica Eisenhardt
Monica Eisenhardt,
clinical social worker
Yvonne Huang
Dr. Yvonne Huang,
pulmonologist
Mary Ellen Kleinhenz
Dr. Mary Ellen Kleinhenz,
pulmonologist