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Interstitial Lung Disease Program

The UCSF Interstitial Lung Disease Program is dedicated to improving the lives of patients with interstitial lung disease, or ILD. We do this by focusing on patient care, education and research.

The program specializes in the comprehensive care of people with all types of interstitial lung disease. We provide state-of-the-art diagnosis and treatment recommendations, working as a team to review each case thoroughly and optimize disease and symptom management. We communicate directly with patients and their referring doctors to assure continuity of care and appropriate follow-up.

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Patient Care

Our team includes pulmonologists, radiologists, pathologists, nurses and dedicated staff members with expertise in interstitial lung disease. We also work closely with doctors specializing in pulmonary hypertension, rheumatology, gastroenterology, sleep disorders, occupational medicine, laboratory medicine, complementary and integrative medicine, lung transplantation and thoracic surgery. When needed, we call upon colleagues in related fields at UCSF and across the country to help us provide optimal care.

Education and Outreach

As part of an academic medical center, the UCSF Interstitial Lung Disease Program is also committed to meeting the educational needs of our community in the area of interstitial lung disease. For patients and families, we hold seminars on interstitial lung disease and offer a support group for anyone affected by this condition, called Living Well with ILD. For doctors and other health care providers, we offer continuing medical education sessions on interstitial lung disease as well as a quarterly newsletter.

Research

Our program conducts both laboratory and patient research. We are a member of the National Institute of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research Network and are involved in most major clinical trials for patients with interstitial lung disease. Our patients have the opportunity to participate in these research trials if they wish.

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Request an Appointment

Getting Here

Interstitial Lung Disease Program
400 Parnassus Ave., Fifth Floor
San Francisco, CA 94143
Phone: (415) 353-2577
Fax: (415) 353-2568

Hours: Friday
8 a.m. – noon

Access Your Health Information Online

This clinic uses UCSF MyChart, an online patient service. Message your provider, request medication refills, view some test results and more.

Learn more about UCSF MyChart

Research and Clinical Trials

Education & Resources

Specific Conditions

Connective Tissue Disease-Associated ILD
Hypersensitivity Pneumonitis
Idiopathic Pulmonary Fibrosis
Sarcoidosis

Medications Used in ILD

FAQ: Acetylcysteine
FAQ: Azathioprine
FAQ: Cyclophosphamide
FAQ: Methotrexate
FAQ: Mycophenolate
FAQ: Prednisone

Supplemental Oxygen

Supplemental Oxygen

Nutrition in ILD

ILD Nutrition Manual

Pulmonary Rehab

Pulmonary Rehabilitation for ILD Patients

Support Group

Living Well With Interstitial Lung Disease

Additional Resources

Resources for Specific ILDs

Connective Tissue-Related ILD:
(Dermatomyositis, Polymyositis, Mixed Connective Tissue Disease, Wegener's, Sjogren's, Scleroderma, Sarcoid, Rheumatoid Arthritis, Raynaud's)
American Autoimmune Related Diseases Association
American College of Rheumatology
Scleroderma Foundation

Familial Pulmonary Fibrosis
National Jewish Health
Christine Garcia, MD, PhD, University of Texas Southwestern Medical Center
(800) 396-6270

Idiopathic Pulmonary Fibrosis (IPF)
Coalition for Pulmonary Fibrosis
Pulmonary Fibrosis Foundation

Lymphangioleiomyomatosis (LAM)
The LAM Foundation

Sarcoidosis
Foundation for Sarcoidosis Research
UCSF Sarcoidosis Research Program

Medication Information

Mayo Clinic Drugs and Supplements Information
MedlinePlus Drugs, Supplements and Herbal Information

Conditions Associated with ILD

Gastroesophageal reflux disease (GERD)
International Foundation for Gastrointestinal Disorders
MedlinePlus: GERD information

Pulmonary hypertension
American Heart Association: Information on pulmonary hypertension
Pulmonary Hypertension Association

Sleep and sleep apnea
American Sleep Apnea Association
MedlinePlus: Sleep apnea information
National Sleep Foundation

Smoking
Tobacco Free California
UCSF Smoking Cessation Services

ILD Symptoms and Complications

Anxiety and Depression
Freedom From Fear
UCSF Osher Center for Integrative Medicine

Deconditioning
California Society for Pulmonary Rehabilitation
Pulmonary Education & Research Foundation: Essentials of Pulmonary Rehabilitation

Dyspnea (Shortness of Breath)
Pulmonary Education and Research Foundation
Better Breathers Clubs

Hypoxemia and Supplemental Oxygen
Emphysema Foundation for our Right to Survive (focuses on COPD, but lots of useful information about oxygen equipment, traveling with oxygen, etc.)
National Home Oxygen Patients Association
Portable Oxygen: A User's Perspective

Weight Loss or Gain
Obesity Education Initiative, National Heart Lung and Blood Institute
UCSF Weight Management Program
Weight Watchers

General Lung Health Information

American Lung Association
National Heart Lung and Blood Institute
National Library of Medicine
UpToDate.com

ILD Support Groups

Better Breathers Clubs
Central Valley Pulmonary Fibrosis Support Group, (916) 354-1324 or sandrarock@yahoo.com
Idiopathic Pulmonary Fibrosis Support Group, El Camino Hospital
Living Well With ILD Support Group, UCSF Interstitial Lung Disease Program
Pulmonary Fibrosis Support Group, Stanford Center for Interstitial Lung Disease
Sarcoidosis Support Group, Sarcoidosis Awareness of Northern California

Caregiver Support

Family Caregiver Alliance

Resources for Financial Hardship

Caring Voice Coalition
Medicaid Information
Medicare Contacts
National Rehabilitation Information Center, Resources for the Public
NeedyMeds.org
Partnership for Prescription Assistance
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs

Research Studies and Getting Involved

ClinicalTrials.gov
Coalition for Pulmonary Fibrosis
Foundation for Sarcoidosis Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
Scleroderma Foundation
The LAM Foundation
UCSF Interstitial Lung Disease Program Research

Lung Transplantation

American Society of Transplantation
UCSF Lung Transplant Program
United Network for Organ Sharing

Advance Care Planning

End of Life Resources, AARP
National Hospice and Palliative Care Organization
Tool Kit for Health Care Advanced Planning, American Bar Association

Research

The UCSF ILD Program is not only a clinic for patient care, but also an active research program. Our research is a collaborative effort among patients, providers and scientists. We carry out several types of interstitial lung disease research:

  • Clinical research — This is research on patients and populations. Clinical research includes both observational studies and clinical trials that use the knowledge gained in basic research to study the benefits of new drugs.
  • Database/registry — The UCSF ILD Program has an ongoing longitudinal research database study. This database is a rich source of data for investigators and has led to important research publications.
  • Basic research — This is experimental work, carried out in a laboratory, which helps us to better understand the fundamental, cellular mechanisms of interstitial lung disease.

We are a member of the National Institutes of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research network, and are involved in most major clinical trials for patients with interstitial lung disease. Funding for our research comes from a variety of public and private sources.

During your visit you may be asked if you are interested in participating in the ILD Database study. It is completely voluntary and the decision whether or not to participate will not impact your care in any way. You will also have the opportunity to learn more about other research studies, including clinical trials.

For a list of currently enrolling ILD studies at UCSF, go to:
http://pulmonary.ucsf.edu/activities/ild/clinicaltrials.html

For a list of all ILD research studies conducted in the United States, go to:
www.clinicaltrials.gov

For general information about clinical trials, please visit the following webpage from the National Institutes of Health (NIH):
www.nlm.nih.gov/medlineplus/tutorials/clinicaltrials/htm/index.htm

Related Information

Ways to Give

Clinics & Centers

Clinic Team

Harold Collard
Dr. Harold Collard,
director of the Interstitial Lung Disease Program
Michele Desmarais
Michele Desmarais,
research coordinator
Brett Elicker
Dr. Brett Elicker,
radiologist
Jeffrey A Golden
Dr. Jeffrey A. Golden,
pulmonologist
Antonio Gomez
Dr. Antonio Gomez,
pulmonary and critical care fellow
Andrew Gross
Dr. Andrew Gross,
rheumatologist
Kirk Jones
Dr. Kirk Jones,
pathologist
Talmadge King
Dr. Talmadge King,
pulmonologist
Laura Koth
Dr. Laura Koth,
pulmonologist
Jasleen Kukreja
Dr. Jasleen Kukreja,
lung surgeon
Joyce Lee
Dr. Joyce Lee,
pulmonologist and critical care specialist
Paul Wolters
Dr. Paul Wolters,
pulmonologist
Sally McLaughlin
Sally McLaughlin,
advanced lung disease nurse
Jane Berkeley
Jane Berkeley,
clinical research coordinator
Joan Chen
Joan Chen,
research assistant
Archer Eller
Archer Eller,
clinical research coordinator
Anthony Shum
Dr. Anthony Shum,
pulmonologist