The UCSF Interstitial Lung Disease Program is dedicated to improving the lives of patients with interstitial lung disease, or ILD. We do this by focusing on patient care, education and research.
The program specializes in the comprehensive care of people with all types of interstitial lung disease. We provide state-of-the-art diagnosis and treatment recommendations, working as a team to review each case thoroughly and optimize disease and symptom management. We communicate directly with patients and their referring doctors to assure continuity of care and appropriate follow-up.
Our team includes pulmonologists, radiologists, pathologists, nurses and dedicated staff members with expertise in interstitial lung disease. We also work closely with doctors specializing in pulmonary hypertension, rheumatology, gastroenterology, sleep disorders, occupational medicine, laboratory medicine, complementary and integrative medicine, lung transplantation and thoracic surgery. When needed, we call upon colleagues in related fields at UCSF and across the country to help us provide optimal care.
As part of an academic medical center, the UCSF Interstitial Lung Disease Program is also committed to meeting the educational needs of our community in the area of interstitial lung disease. For patients and families, we hold seminars on interstitial lung disease and offer a support group for anyone affected by this condition, called Living Well with ILD. For doctors and other health care providers, we offer continuing medical education sessions on interstitial lung disease as well as a quarterly newsletter.
Our program conducts both laboratory and patient research. We are a member of the National Institute of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research Network and are involved in most major clinical trials for patients with interstitial lung disease. Our patients have the opportunity to participate in these research trials if they wish.
Interstitial Lung Disease Program
400 Parnassus Ave., Fifth Floor
San Francisco, CA 94143
Phone: (415) 353-2577
Fax: (415) 353-2568
Hours: Friday
8 a.m. – noon
This clinic uses UCSF MyChart, an online patient service. Message your provider, request medication refills, view some test results and more.
Specific Conditions
Connective Tissue Disease-Associated ILD
Hypersensitivity Pneumonitis
Idiopathic Pulmonary Fibrosis
Sarcoidosis
Medications Used in ILD
FAQ: Acetylcysteine
FAQ: Azathioprine
FAQ: Cyclophosphamide
FAQ: Methotrexate
FAQ: Mycophenolate
FAQ: Prednisone
Supplemental Oxygen
Nutrition in ILD
Pulmonary Rehab
Pulmonary Rehabilitation for ILD Patients
Support Group
Living Well With Interstitial Lung Disease
Connective Tissue-Related ILD:
(Dermatomyositis, Polymyositis, Mixed Connective Tissue Disease, Wegener's, Sjogren's, Scleroderma, Sarcoid, Rheumatoid Arthritis, Raynaud's)
American Autoimmune Related Diseases Association
American College of Rheumatology
Scleroderma Foundation
Familial Pulmonary Fibrosis
National Jewish Health
Christine Garcia, MD, PhD, University of Texas Southwestern Medical Center
(800) 396-6270
Idiopathic Pulmonary Fibrosis (IPF)
Coalition for Pulmonary Fibrosis
Pulmonary Fibrosis Foundation
Lymphangioleiomyomatosis (LAM)
The LAM Foundation
Sarcoidosis
Foundation for Sarcoidosis Research
UCSF Sarcoidosis Research Program
Mayo Clinic Drugs and Supplements Information
MedlinePlus Drugs, Supplements and Herbal Information
Conditions Associated with ILD
Gastroesophageal reflux disease (GERD)
International Foundation for Gastrointestinal Disorders
MedlinePlus: GERD information
Pulmonary hypertension
American Heart Association: Information on pulmonary hypertension
Pulmonary Hypertension Association
Sleep and sleep apnea
American Sleep Apnea Association
MedlinePlus: Sleep apnea information
National Sleep Foundation
Smoking
Tobacco Free California
UCSF Smoking Cessation Services
ILD Symptoms and Complications
Anxiety and Depression
Freedom From Fear
UCSF Osher Center for Integrative Medicine
Deconditioning
California Society for Pulmonary Rehabilitation
Pulmonary Education & Research Foundation: Essentials of Pulmonary Rehabilitation
Dyspnea (Shortness of Breath)
Pulmonary Education and Research Foundation
Better Breathers Clubs
Hypoxemia and Supplemental Oxygen
Emphysema Foundation for our Right to Survive (focuses on COPD, but lots of useful information about oxygen equipment, traveling with oxygen, etc.)
National Home Oxygen Patients Association
Portable Oxygen: A User's Perspective
Weight Loss or Gain
Obesity Education Initiative, National Heart Lung and Blood Institute
UCSF Weight Management Program
Weight Watchers
General Lung Health Information
American Lung Association
National Heart Lung and Blood Institute
National Library of Medicine
UpToDate.com
Better Breathers Clubs
Central Valley Pulmonary Fibrosis Support Group, (916) 354-1324 or sandrarock@yahoo.com
Idiopathic Pulmonary Fibrosis Support Group, El Camino Hospital
Living Well With ILD Support Group, UCSF Interstitial Lung Disease Program
Pulmonary Fibrosis Support Group, Stanford Center for Interstitial Lung Disease
Sarcoidosis Support Group, Sarcoidosis Awareness of Northern California
Resources for Financial Hardship
Caring Voice Coalition
Medicaid Information
Medicare Contacts
National Rehabilitation Information Center, Resources for the Public
NeedyMeds.org
Partnership for Prescription Assistance
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs
Research Studies and Getting Involved
ClinicalTrials.gov
Coalition for Pulmonary Fibrosis
Foundation for Sarcoidosis Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
Scleroderma Foundation
The LAM Foundation
UCSF Interstitial Lung Disease Program Research
American Society of Transplantation
UCSF Lung Transplant Program
United Network for Organ Sharing
End of Life Resources, AARP
National Hospice and Palliative Care Organization
Tool Kit for Health Care Advanced Planning, American Bar Association
The UCSF ILD Program is not only a clinic for patient care, but also an active research program. Our research is a collaborative effort among patients, providers and scientists. We carry out several types of interstitial lung disease research:
We are a member of the National Institutes of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research network, and are involved in most major clinical trials for patients with interstitial lung disease. Funding for our research comes from a variety of public and private sources.
During your visit you may be asked if you are interested in participating in the ILD Database study. It is completely voluntary and the decision whether or not to participate will not impact your care in any way. You will also have the opportunity to learn more about other research studies, including clinical trials.
For a list of currently enrolling ILD studies at UCSF, go to:
http://pulmonary.ucsf.edu/activities/ild/clinicaltrials.html
For a list of all ILD research studies conducted in the United States, go to:
www.clinicaltrials.gov
For general information about clinical trials, please visit the following webpage from the National Institutes of Health (NIH):
www.nlm.nih.gov/medlineplus/tutorials/clinicaltrials/htm/index.htm
