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NF/Ras Pathway Clinic

The NF/Ras Pathway Clinic provides prenatal, pediatric and adult care with comprehensive referral services to appropriate specialists in the UCSF NF/Ras Pathway Referral Network. This group consists of over 50 talented UCSF specialists who have identified themselves as having both expertise and interest in caring for individuals with Ras pathway disorders.

The NF/Ras Pathway Clinic cares for patients who need to be evaluated for or have been diagnosed with:

  • Neurofibromatosis type 1
  • Neurofibromatosis type 2
  • NF1-like
  • Schwannomatosis
  • Capillary malformation-AV malformation
  • Noonan syndrome
  • LEOPARD syndrome
  • Costello syndrome
  • Cardio-facio-cutaneous (CFC) syndrome
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Most of the conditions we treat are the result from gene mutations that affect key proteins in the Ras signaling pathway. As a consequence, there is significant phenotypic (symptomatic) overlap between the conditions. Due to the multi-specialty care typically required by patients, it is easy for things to fall through the cracks. Our clinic has a proactive referral management systems to help ensure that the patient continues to receive appropriate services, and facilitates improved communications between the primary care physician, the specialty physicians and the patients themselves.

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To make an appointment, please call the number below for any necessary forms and have your primary care provider or specialist fax the forms back to us.

Getting Here

NF/Ras Pathway Clinic
400 Parnassus Ave., Second Floor
San Francisco, CA 94143
Phone: (415) 476-2757
Fax: (415) 476-9305

What to Bring

  • Health insurance information including authorizations or referrals
  • List of prescription medications and dosages
  • List of medications that you're allergic to
  • List of questions you may have
  • Recent test results related to your condition
  • Paper and pencil to take notes

Research and Clinical Trials

Last updated May 17, 2012

Referrals

To refer a patient to the UCSF NF/Ras Pathway Clinic, simply fill out our NF/Ras Pathway referral form. If you do not have one, please see the PDF on this page and download it. Please be sure to include a copy of the patient's insurance card, authorization (if needed) and pertinent medical records with your request.

You may fax your request to: (415) 476-9305

Or mail it to:
NF/Ras Pathway Clinic, UCSF Dept.
Pediatrics/Division Genetics
533 Parnassus Ave., Box 0706
San Francisco, CA 94143-0706

Related Information

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Clinic Team

Katherine A. Rauen
Dr. Katherine A. Rauen,
pediatric medical geneticist