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NF/Ras Pathway Clinic

The NF/Ras Pathway Clinic provides prenatal, pediatric and adult care with comprehensive referral services to appropriate specialists in the UCSF NF/Ras Pathway Referral Network. This group consists of more than 50 UCSF specialists who have expertise in Ras pathway disorders, related to genetic mutations that cause certain cancers, skeletal muscle abnormalities and other disorders.

Our clinic provides health care support and management for patients who have or are at risk for having a Ras pathway disorder. These include:

  • Neurofibromatosis type 1
  • Neurofibromatosis type 2
  • NF1-like
  • Schwannomatosis
  • Capillary malformation-AV malformation
  • Noonan syndrome
  • LEOPARD syndrome
  • Costello syndrome
  • Cardio-facio-cutaneous (CFC) syndrome
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Services

The goal of the clinic is to help patients and their families by:

  • Working with primary care doctors to ensure they have the information to properly care for patients with Ras pathway disorders.
  • Providing genetic counseling and information regarding the condition, new treatments and clinical trial opportunities.
  • Helping individuals and families contact others who have the same condition.
  • Providing seamless transitions from pediatric to adult care specialists, and serving as consultants for continuity of care.
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To make an appointment, please call the number below for any necessary forms and have your primary care provider or specialist fax the forms back to us.

Getting Here

NF/Ras Pathway Clinic
400 Parnassus Ave., Second Floor
San Francisco, CA 94143
Phone: (415) 476-2757
Fax: (415) 476-9305

What to Bring

  • Health insurance information including authorizations or referrals
  • List of prescription medications and dosages
  • List of medications that you're allergic to
  • List of questions you may have
  • Recent test results related to your condition
  • Paper and pencil to take notes

Access Your Health Information Online

This clinic uses UCSF MyChart, an online patient service. Message your provider, request medication refills, view some test results and more.

Learn more about UCSF MyChart

Research and Clinical Trials

Referrals

To refer a patient to the UCSF NF/Ras Pathway Clinic, please fill out the NF/Ras Pathway referral form. Please be sure to include a copy of the patient's insurance card, authorization (if needed) and pertinent medical records with your request.

You may fax your request to (415) 476-9305.

Or mail the form to:
NF/Ras Pathway Clinic
Pediatrics, Division of Medical Genetics
533 Parnassus Ave., Box 0706
San Francisco, CA 94143-0706

If you have any questions, please call the clinic at (415) 476-2757.