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Hematology and BMT Resource Guide:
Employment, Insurance and Financial Resources

Cancer and Employment

Americans with Disabilities Act (ADA)
Information about employment rights for disabled individuals.
Phone: (800) 669-4000

California Department of Fair Housing and Employment
Information about employment rights, including the California Family Rights Act.
Phone: (800) 884-1684

Cancer and Careers
Practical information about cancer and employment. Offers free booklets for download including the Living and Working with Cancer Workbook.
Phone: (212) 685-5955

Department of Rehabilitation
Offers job training, education, transportation and job placement for individuals with disabilities to enter or re-enter the workforce.
Phone: (916) 324-1313

Family and Medical Leave Act Regulations and Information
U.S. Department of Labor, Employment Standards and Wage Division.
Phone: (866) 487-9243

Job Accommodation Network
Information about workplace accommodations.
Phone: (800) ADA-WORK

Disability Benefits

Benefits Education Center (Daniel Fortuno)
Expert private benefits counseling for issues related to disability, insurance and employment. Particularly helpful for complicated cases.
Phone: (415) 345-1725

California Foundation for Independent Living Resource Centers
Offers a variety of services for disabled individuals, including free benefits counseling and workshops. To find your local center, call (916) 325-1690 or search "find an ILC" at www.cfilc.org.

California State Disability Benefits
Eligibility information and application download available at www.edd.ca.gov/Disability/Disability_Insurance.htm.
Phone: (800) 480-3287
CA State Employees: (866) 352-7675
CA State Government Employees: (866) 758-9768

Department of Veterans Affairs
Information about disability and pension benefits. Veterans with diseases related to toxin exposure during wartime (agent orange) may be eligible for disability compensation benefits. Veterans may also be eligible for free medical care and medications.
Phone: (800) 827-1000

Disability Benefits 101
Information about disability benefits and insurance in California.

Social Security Disability Benefits (SSDI) and Supplemental Security Income (SSI)
Federal disability income programs.
Phone: (800) 772-1213

Health Insurance

COBRA, Conversion and HIPAA Guarantee Issue (Extending Insurance After COBRA Expires)

Consumer Guide to Getting and Keeping Health Insurance in California

COBRA Information and Questions
U.S. Dept of Labor, Employee Benefits Security Administration
Phone: (866) 275-7922

HIPAA Guarantee Issue and Conversion Plans
California Department of Insurance
Phone: (800) 927-4357

Health Insurance with a Pre-Existing Condition

California Major Risk Medical Insurance Plan
Phone (916) 324-4695

Federal Pre-Existing Condition Insurance Plan (PCIP)
Phone: (877) 428-5060

Foundation for Health Coverage Education
Offers free helpline and downloadable booklet: Finding Health Care Coverage in California
Uninsured Helpline: (800) 234-1317

Private Insurance Questions and Concerns

HMO, Blue Cross and Blue Shield Questions
California Department of Managed Health Care, Help Center
Phone: (888) 466-2219

PPO Insurance Questions
California Department of Insurance
Phone: (800) 927-4357

Medi-Cal

California Department of Health Care Services
Application and eligibility information.
Phone: (916) 445-4171

Health Insurance Premium Payment Program (HIPP)
Assistance with payment of private insurance premiums for those with Medi-Cal.
Phone: (866) 298-8443

Medi-Cal Regulation Specialists
Private counseling and representation for Medi-Cal applications. Helpful for complicated cases and applicants with excess assets.
Phone: (877) 677-6334

Medicare

Health Insurance Counseling & Advocacy Program (HICAP)
Free in-person education about Medicare.
Phone: (800) 434-0222

Medicare Rights Center
Education about Medicare with free hotline.
Phone: (800) 333-4114

Legal Assistance

American Bar Association or FindLegalHelp.org
For possible assistance with bankruptcy, estate planning and other legal matters.
Phone: (800) 285-2221

Bay Area Legal Aid
Provides free legal representation for issues related to housing preservation, domestic violence, health care access and benefits.
Phone: (800) 551-5554

Cancer Legal Resource Center
Free information and hotline for cancer-related legal issues such as insurance coverage, taking time off work, access to health care and benefits, and estate planning.
Phone: (866) THE-CLRC

Estate Planning — State Bar of California
Informational pamphlets, including "Do I Need a Will?" "Do I Need Estate Planning?" and "Do I Need a Living Trust?"
Legal referral helpline: (866) 44-CA-LAW

Patient Advocate Foundation
Information, mediation and negotiation to settle issues with access to care, health insurance appeals, medical debt and job retention.
Phone: (800) 532-5274

American Bar Association, Volunteer Tax Preparation
Phone: (800) 285-2221

Credit Counseling

Consumer Credit Counseling Service (CCCS)
Offers debt management and bankruptcy prevention.
Phone: (800) 873-CCCS

Financial Assistance Programs

American Cancer Society
Assistance with lodging and transportation.
Phone: (800) 227-2345

The Bone Marrow Foundation
Grant for patients undergoing transplant.
Phone: (800) 365-1336

CancerCare
Assistance with transportation expenses.
Phone: (800) 813-HOPE

Chronic Disease Fund
Assistance with insurance premiums and drug co-pays for Multiple Myeloma and MDS.
Phone: (877) 968-7233

David Andrew Pooh Maddan Foundation
Financial grants for young adults age 18 to 35.

Healthwell Foundation
Assistance with insurance premiums and drug co-pays for lymphoma, multiple myeloma and MDS.
Phone: (800) 675-8416

Leukemia and Lymphoma Society
Assistance grants to any patient with blood cancer. Additional funding for those with lymphoma, multiple myeloma, MDS and Waldenstrom's Macroglobulinemia.
Phone: (800) 955-4572

Lymphoma Research Foundation
Assistance with medical expenses and travel for those with lymphoma.
Phone: (800) 500-9976

National Marrow Donor Program
Assistance for unrelated-donor transplant recipients.
Phone: (888) 999-6743

Patient Advocate Foundation
Assistance with drug co-pays for those with lymphoma, multiple myeloma and MDS.
Phone: (866) 512-3861

Patient Access Network Foundation
Assistance with drug co-pays for those with lymphoma, multiple myeloma and MDS.
Phone: (866) 316-PANF

Partnership for Prescription Assistance
Database of organizations offering co-pay help.
Phone: (888) 477-2669

Women's Cancer Resource Center
Assistance grants for those in Alameda and Contra Costa County.
Phone: (510) 601-4040

Fundraising

National Foundation for Transplants
Phone: (800) 489-3863

National Transplant Assistance Fund
Phone: (800) 642-8399

Housing Assistance and Foreclosure Prevention

U.S. Department of Housing and Urban Development (HUD)

Rental Assistance and Subsidized Housing

Information about rental assistance and subsidized housing programs in California:
http://portal.hud.gov/hudportal/HUD?src=/states/california

Public housing office locator by city:
http://www.hud.gov/offices/pih/pha/contacts/states/ca.cfm
Phone: (202) 708-1112

Foreclosure Prevention

Information about foreclosure prevention and directory of HUD-approved counseling agencies:
www.hud.gov/local/ca/homeownership/foreclosure.cfm
Phone: (800) 569-4287 to find a local HUD-approved counseling agency

Homeowner's Hope Hotline
Phone: (888) 995-HOPE


Special Programs

Palliative Care

Continue Reading:

Support Groups and Supportive Care Programs

Hematology and BMT Resource Guide Index:

 

Reviewed by health care specialists at UCSF Medical Center.

This information is for educational purposes only and is not intended to replace the advice of your doctor or health care provider. We encourage you to discuss with your doctor any questions or concerns you may have.