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Clefts

Velocardiofacial Syndrome

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Treatment

Children with VCFS can have a range of characteristics, which will dictate what treatment is required. The cleft palate is usually repaired when the infant is around 10 months old or when he or she is starting to make sounds of speech. Palate surgery often takes about two or three hours, with the infant staying in the hospital one or two nights. Some children with VCFS experience speech difficulties even when the palate looks normal. In addition, orthodontic treatment may be necessary.

If there is evidence of developmental delay, the child should be referred to an infant stimulation program to receive thorough developmental testing and appropriate interventions. In California, parents should contact their local Regional Center. Such programs are federally mandated and are available to all eligible children regardless of income.

A child with VCFS may encounter social and emotional challenges unique to this condition. Support organizations and resources are available for children and their families.

 

Reviewed by health care specialists at UCSF Children's Hospital.
Last updated May 8, 2007

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