The UCSF Interstitial Lung Disease Program is dedicated to improving the lives of patients with interstitial lung disease, or ILD. We do this by focusing on patient care, education and research.
The program specializes in the comprehensive care of people with all types of interstitial lung disease. We provide state-of-the-art diagnosis and treatment recommendations, working as a team to review each case thoroughly and optimize disease and symptom management. We communicate directly with patients and their referring doctors to assure continuity of care and appropriate follow-up.
Our team includes pulmonologists, radiologists, pathologists, nurses and dedicated staff members with expertise in interstitial lung disease. We also work closely with doctors specializing in pulmonary hypertension, rheumatology, gastroenterology, sleep disorders, occupational medicine, laboratory medicine, complementary and integrative medicine, lung transplantation and thoracic surgery. When needed, we call upon colleagues in related fields at UCSF and across the country to help us provide optimal care.
As part of an academic medical center, the UCSF Interstitial Lung Disease Program is also committed to meeting the educational needs of our community in the area of interstitial lung disease. For patients and families, we hold seminars on interstitial lung disease and offer a support group for anyone affected by this condition, called Living Well with ILD. For doctors and other health care providers, we offer continuing medical education sessions on interstitial lung disease as well as a quarterly newsletter.
Our program conducts both laboratory and patient research. We are a member of the National Institute of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research Network and are involved in most major clinical trials for patients with interstitial lung disease. Our patients have the opportunity to participate in these research trials if they wish.
Interstitial Lung Disease Program
400 Parnassus Ave., Fifth Floor
San Francisco, CA 94143
Phone: (415) 353-2577
Fax: (415) 353-2568
8 a.m. – noon
This clinic uses UCSF MyChart, an online patient service. Message your provider, request medication refills, view some test results and more.
Medications Used in ILD
Nutrition in ILD
Connective Tissue-Related ILD:
(Dermatomyositis, Polymyositis, Mixed Connective Tissue Disease, Wegener's, Sjogren's, Scleroderma, Sarcoid, Rheumatoid Arthritis, Raynaud's)
American Autoimmune Related Diseases Association
American College of Rheumatology
Familial Pulmonary Fibrosis
National Jewish Health
Christine Garcia, MD, PhD, University of Texas Southwestern Medical Center
The LAM Foundation
Gastroesophageal reflux disease (GERD)
International Foundation for Gastrointestinal Disorders
MedlinePlus: GERD information
Hypoxemia and Supplemental Oxygen
Emphysema Foundation for our Right to Survive (focuses on COPD, but lots of useful information about oxygen equipment, traveling with oxygen, etc.)
National Home Oxygen Patients Association
Portable Oxygen: A User's Perspective
Better Breathers Clubs
Central Valley Pulmonary Fibrosis Support Group, (916) 354-1324 or firstname.lastname@example.org
Idiopathic Pulmonary Fibrosis Support Group, El Camino Hospital
Living Well With ILD Support Group, UCSF Interstitial Lung Disease Program
Pulmonary Fibrosis Support Group, Stanford Center for Interstitial Lung Disease
Sarcoidosis Support Group, Sarcoidosis Awareness of Northern California
Caring Voice Coalition
National Rehabilitation Information Center, Resources for the Public
Partnership for Prescription Assistance
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs
Coalition for Pulmonary Fibrosis
Foundation for Sarcoidosis Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
The LAM Foundation
UCSF Interstitial Lung Disease Program Research
The UCSF ILD Program is not only a clinic for patient care, but also an active research program. Our research is a collaborative effort among patients, providers and scientists. We carry out several types of interstitial lung disease research:
We are a member of the National Institutes of Health (NIH)-sponsored Idiopathic Pulmonary Fibrosis Clinical Research network, and are involved in most major clinical trials for patients with interstitial lung disease. Funding for our research comes from a variety of public and private sources.
During your visit you may be asked if you are interested in participating in the ILD Database study. It is completely voluntary and the decision whether or not to participate will not impact your care in any way. You will also have the opportunity to learn more about other research studies, including clinical trials.
For a list of currently enrolling ILD studies at UCSF, go to:
For a list of all ILD research studies conducted in the United States, go to:
For general information about clinical trials, please visit the following webpage from the National Institutes of Health (NIH):