Care of people with Marfan syndrome has significantly improved over the years. Most people will live a normal life span and have a good quality of life, though they will need more medical attention and treatment than the average person. Because Marfan syndrome affects several different parts of the body, people with Marfan syndrome need to see doctors who specialize in genetics, cardiology, orthopedics, ophthalmology and other specialties as needed.
Most of the features of Marfan syndrome can be treated. As mentioned above, aortic dilation can be managed with medications, regular screening of the aorta by echocardiogram, and surgery to prevent aortic dissection. The eye features can be treated with glasses or, if needed, with surgery.
UCSF Health medical specialists have reviewed this information. It is for educational purposes only and is not intended to replace the advice of your doctor or other health care provider. We encourage you to discuss any questions or concerns you may have with your provider.
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