Hereditary Hemorrhagic Telangiectasia (HHT) Center

Comprehensive HHT care at UCSF Health

We're known for our expertise in treating entire families for HHT. As our pediatric patients enter adulthood, we help them seamlessly transition to adult care.

HHT can affect multiple parts of the body, so your care team includes experts in several specialties, including:

• Cardiology

• Dermatology

• Gastroenterology

• Hematology

• Interventional and neurointerventional radiology

• Medical genetics

• Neurological surgery

• Neurology

• Otolaryngology – head and neck surgery

• Pediatrics

• Pulmonology

For people with HHT who are pregnant, we work closely with high-risk obstetricians. This collaborative approach provides specialized care for the unique challenges of HHT during pregnancy.

HHT symptom management and treatment

UCSF Health offers minimally invasive approaches to treating HHT at our state-of-the-art interventional and neurointerventional radiology facilities. You receive care from neurointerventional radiologists who pioneered many of the procedures for AVMs.

We treat all HHT symptoms and complications, including:

• Nosebleeds. We offer a range of interventions, starting with mild techniques. For severe cases, we offer an array of minimally invasive procedures, such as sclerotherapy and laser ablation.

• Brain AVMs. You receive a care plan tailored to your needs, including several minimally invasive options. We're a global leader in Gamma Knife radiosurgeries for brain AVMs.

• Liver AVMs. You have access to the latest therapies for liver AVMs, including our comprehensive liver transplant program.

• Lung AVMs. We have extensive expertise and experience performing pulmonary embolization procedures.

We're here for lifelong care, supporting you and your family members affected by HHT through all stages of life and health. You and your family receive complete symptom management and treatment to address every aspect of HHT.