Neurofibromatosis Type 1 (NF1) & Schwannomatosis
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The UCSF Adult Neurofibromatosis Type 1 (NF1) and Schwannomatosis Clinic brings together specialists with expertise in treating all kinds of NF1 and schwannomatosis, including neurofibromatosis type 2. Our mission is to provide lifelong care for patients with these complex genetic conditions, which cause noncancerous tumors to form in the nervous system. We work closely with the pediatric NF1 clinic to seamlessly transition patients to adult care.
Our goal is to bring our patients the best possible outcomes and quality of life using the latest technologies and treatments. We provide access to clinical trials (studies of promising new therapies) and are part of the Neurofibromatosis Clinical Trials Consortium, a collaboration among clinical centers that share the goal of improving treatments through clinical trials. We are also part of the UCSF Brain Tumor Center, which has a program that connects patients' caregivers and family members with the resources and support they need.
The Children's Tumor Foundation has recognized us as an NF1 and schwannomatosis comprehensive care center for patients with these conditions.
The UCSF Adult Neurofibromatosis Type 1 (NF1) and Schwannomatosis Clinic brings together specialists with expertise in treating all kinds of NF1 and schwannomatosis, including neurofibromatosis type 2. Our mission is to provide lifelong care for patients with these complex genetic conditions, which cause noncancerous tumors to form in the nervous system. We work closely with the pediatric NF1 clinic to seamlessly transition patients to adult care.
Our goal is to bring our patients the best possible outcomes and quality of life using the latest technologies and treatments. We provide access to clinical trials (studies of promising new therapies) and are part of the Neurofibromatosis Clinical Trials Consortium, a collaboration among clinical centers that share the goal of improving treatments through clinical trials. We are also part of the UCSF Brain Tumor Center, which has a program that connects patients' caregivers and family members with the resources and support they need.
The Children's Tumor Foundation has recognized us as an NF1 and schwannomatosis comprehensive care center for patients with these conditions.
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Providers
Line Jacques, MD, MS
Neurosurgery • Pediatric Neurosurgery
Harish N. Vasudevan, MD, PhD
Radiation Oncology
Nicole Jiam, MD
Otolaryngology • Cochlear Implant
Marc Levin, MD, PhD
Comprehensive Ophthalmology
Awards & recognition
Best in California and No. 7 in the nation for cancer care
Best in the West and No. 2 in the nation for neurology & neurosurgery
#1
in the U.S. for number of brain tumor patients treated
Related services
Related conditions & treatments
Conditions
- Neurofibromatosis
- Schwannomatosis
Treatments
- Genetic Testing
- Genetic Counseling
- Acoustic Neuroma Removal
- Hearing Evaluation
Support services
Case Management and Social Work
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Spiritual Care at UCSF
Chaplains representing many faiths are available around the clock to provide support, comfort and counsel to patients, families and caregivers.