Hemophilia Treatment Center
The UCSF Hemophilia Treatment Center is a comprehensive pediatric and adult program for patients with hemophilia, von Willebrand disease, platelet disorders and other rare bleeding disorders. Founded in 1977, our center was one of the first of its kind in the United States. As a state and federally designated Hemophilia Treatment Center, we provide a full range of services, including diagnosis, treatment, counseling and education.
At UCSF, we embrace the concept of treating the whole person and family by listening and addressing all medical and psychosocial aspects of living with a bleeding disorder. We develop individualized care plans for patients and families, and provide opportunities to participate in clinical trials.
For children with hemophilia, see our Pediatric Hemophilia Treatment Center.
Our team consists of hematologists (blood specialists), nurse practitioners, nurses, psychosocial professionals and physical therapists, all of whom are leaders in their field. We provide patients and their families with medical care and emotional support.
- Hematologists – physicians specializing in blood disorders
- Nurse practitioners – advanced practice nurses specializing in blood disorders
- Nurses – nurses specializing in hemophilia care
- Social Workers – specialists who provide emotional and practical support and assist with resources
- Physical therapists – specialists in physical activity, exercise and rehabilitation
- Orthopedic surgeons – surgeons who treat disorders of the bones and joints
- Dentists – specialists in treating patients with oral bleeding problems
Comprehensive care entails:
- Yearly visit at a comprehensive care clinic, where patients see the nurses, hematologist, orthopedic surgeon, physical therapist, dentist and social worker for an up-to-date assessment
- Guidance on prevention and overall healthy living
- Early diagnosis and intervention to prevent complications
- Assessment and treatment by a team of specialists
- Routine and emergency care 24/7, 365 days a year
- Education and training in self-care and health management
- Training to do home infusions
- Psychosocial assessments, individual and family counseling, and help with health insurance issues
- Family screening and genetic counseling
- Coordination of any surgery or hospital stay, from pre-admission through discharge
- Education of school nurses and day care providers as needed
- Education for medical professionals on management of bleeding disorders
- Access to leading-edge research studies
- Referrals to experts in hepatology, AIDS care, orthopedics, oral surgery, obstetrics and gynecology, and reproductive endocrinology
- Education in bleeding and clotting disorders for patients, family members, teachers, employers and the community
- Education in hemophilia, sickle cell anemia, HIV and related disorders for health care professionals
- Resident and fellowship training in the comprehensive care of hemophilia and other relevant disorders
- Clotting-factor and factor-inhibitor assays, including those needed within 24 hours
- Hepatitis and HIV screening
- DNA analysis for carrier detection
- Other specialized tests
- Carrier testing
- Prenatal diagnosis
- Pre-implantation genetic diagnosis
Doctor referral required
Awards & recognition
Among the top hospitals in the nation
Designated hemophilia treatment center (Centers for Disease Control and Prevention)
Founded in 1977
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your condition
- List of your medications, including dosages, plus any you're allergic to
- List of questions you may have
- Device or paper for taking notes
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