HHT Center of Excellence
The UCSF HHT Center of Excellence specializes in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.
Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.
We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.
Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).
Our Services
- Patient education and management of HHT-associated symptoms and complications
- The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
- Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
- Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations
Doctor referral may be required
Our locations
Our team
-
Mandar A. Aras
MD, PhD
Cardiologist -
Miles B. Conrad
MD, MPH
Interventional radiologist -
Najwa El-Nachef
MD
Gastroenterologist -
Andrew N. Goldberg
MD, MSCE, FACS
Otolaryngologist -
Steven W. Hetts
MD
Neurointerventional radiologist -
Nerissa U. Ko
MD
Neurologist -
Jennifer C. Lai
MD, MBA, FACP
Hepatologist -
Andrew D. Leavitt
MD
Hematologist -
Patricia A. Loftus
MD
Rhinologist and skull base surgeon -
R. Peter Lokken
MD, MPH
Interventional radiologist -
Neil Mehta
MD
Hepatologist -
Isaac M. Neuhaus
MD
Dermatologic surgeon -
Michael Ohliger
MD, PhD
Radiologist -
Steven D. Pletcher
MD
Otolaryngologist -
Joseph Shieh
MD, PhD
Medical geneticist -
Mark Sugi
MD
Radiologist -
Thiennu Vu
MD, PhD
Pulmonologist -
Daniel (Danny) Langston
NP, MSN
Nurse practitioner -
Darcy Phelan
NP, MSN
Nurse practitioner
Clinical trials
Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia
This study will investigate predictors of brain outcomes in HHT patients. The investigators hypothesize that the presence of brain arteriovenous malformation (BAVM) in HHT patients versus HHT patients without BAVM and multiplicity...
Recruiting
ALTA TIPS: A 5-year Longitudinal Observational Study of Patients Undergoing TIPS Placement
Transjugular Intrahepatic Portosystemic Shunt (TIPS) was first developed as a salvage tool for life threatening variceal bleeding or for the management of severe ascites refractory to medical therapy. Over the past decade there ha...
Recruiting
68Ga-PSMA PET in Diagnosing Metastasis in Patients With Ovarian Cancer
Will be descriptively reported for each patient and correlated with the lesions observed in standard imaging computed tomography/magnetic resonance imaging (CT/MRI). In addition, the mean, range, and standard deviation of standard...
Recruiting
Support services
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your condition
- List of your medications, including dosages, plus any you're allergic to
- List of questions you may have
- Device or paper for taking notes
International Services
If you live outside the United States and are coming to UCSF for medical treatment, our patient liaisons can help coordinate all aspects of your visit.
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Interpreting Services
UCSF offers interpreters in various languages, including American Sign Language (ASL), as well as services for deaf, hard-of-hearing and visually impaired patients.
Hospital Stays
Checking into the hospital? Find helpful information by clicking on the relevant “Your Hospital Stay” booklet: Mission Bay, Parnassus or Mount
Zion.
Your Doctor Visit
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Our research initiatives
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UCSF Center for Cerebrovascular Research
The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.
