HHT Center of Excellence
The UCSF HHT Center of Excellence specializes in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.
Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.
We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.
Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).
Our Services
- Patient education and management of HHT-associated symptoms and complications
- The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
- Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
- Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations
Doctor referral may be required
Our locations
Our team
-
Mandar Aras
MD, PhD
Cardiologist -
Miles Conrad
MD, MPH
Interventional radiologist -
Najwa El-Nachef
MD
Gastroenterologist -
Andrew N. Goldberg
MD, MSCE, FACS
Otolaryngologist -
Steven Hetts
MD
Neurointerventional radiologist -
Nerissa Ko
MD
Neurologist -
Jennifer C. Lai
MD, MBA, FACP
Hepatologist -
Andrew Leavitt
MD
Hematologist -
Patricia Loftus
MD
Rhinologist and skull base surgeon -
Neil Mehta
MD
Hepatologist -
Isaac Neuhaus
MD
Dermatologic surgeon -
Steven D. Pletcher
MD
Otolaryngologist -
Joseph Shieh
MD, PhD
Medical geneticist -
Thiennu Vu
MD, PhD
Pulmonologist -
Daniel (Danny) Langston
NP, MSN
Nurse practitioner -
Darcy Phelan
NP, MSN
Nurse practitioner
Clinical trials
Support services
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your condition
- List of your medications, including dosages, plus any you're allergic to
- List of questions you may have
- Device or paper for taking notes
International Services
If you live in another country and are coming to UCSF for medical
treatment, our patient liaisons can help coordinate all aspects of your visit.
Interpreters
UCSF offers language services at no charge for patients with limited
English, as well as for patients who are deaf or have trouble hearing.
Hospital Stays
Checking into the hospital? Find helpful information by clicking on the relevant “Your Hospital Stay” booklet: Mission Bay, Parnassus or Mount
Zion.
Your Doctor Visit
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Learn more
Our research initiatives
-
UCSF Center for Cerebrovascular Research
The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.
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