HHT Center of Excellence
The UCSF HHT Center of Excellence specializes in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.
Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.
We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.
Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).
Our Services
- Patient education and management of HHT-associated symptoms and complications
- The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
- Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
- Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations
Images and reports
Getting your results
A radiologist will review your images and write a report. When finalized, the report and your images will be available in MyChart, UCSF's secure online portal for patients. You can access this report as soon as this occurs, so you may see it before your referring doctor does. Learn more about receiving test results and medical reports in MyChart. If you have questions about a report, please contact your referring doctor.
To get a CD of your medical images and reports, send a request to the UCSF Imaging Library.
Sending images to UCSF
If you need to send medical images that were taken at another institution to your UCSF radiologist, you can do so through our secure online portal. For instructions, visit How to Send Radiology Images to UCSF.
Doctor referral may be required
Our locations
Our team
-
Mandar A. Aras
MD, PhD
Heart Failure, Cardiology -
Anna Butrymowicz
MD
Otolaryngology -
Miles B. Conrad
MD, MPH
Interventional Radiology -
Teresa De Marco
MD
Heart Failure -
Heather Fullerton
MD, MA
Vascular Neurology, Pediatric Neurology -
Ilona J. Frieden
MD
Pediatric Dermatology -
Andrew N. Goldberg
MD
Sleep Surgery, Rhinology and Sinus Surgery -
Jose G. Gurrola
MD
-
Steven W. Hetts
MD
Neuroradiology, Interventional Radiology -
Nerissa U. Ko
MD, MA
Neurology, Critical Care Medicine -
Jennifer C. Lai
MD, MBA
Transplant Hepatology, Gastroenterology -
Andrew D. Leavitt
MD
Blood Banking and Transfusion Medicine, Hematology -
Patricia A. Loftus
MD
-
R. Peter Lokken
MD, MPH
Diagnostic Radiology, Interventional Radiology -
Neil Mehta
MD
Transplant Hepatology, Gastroenterology -
Andrew H. Murr
MD
Otolaryngology -
Kazim Narsinh
MD
Diagnostic Radiology, Interventional Radiology -
Isaac M. Neuhaus
MD
Dermatology, Laser Surgery and Cosmetic Dermatology -
Steven D. Pletcher
MD
Rhinology and Sinus Surgery -
Joseph Shieh
MD, PhD
Medical Genetics
Clinical trials
Comprehensive HHT Outcomes Registry of the United States (CHORUS)
Utilizing the "HHT Baseline Assessment Scale," this measure focuses on recruiting a diverse cohort of HHT patients across North America. Comprehensive baseline clinical, demographic, and lifestyle data will be collected and entere...
Recruiting
Prehab and Creatine/Whey Supplementation in Frailty Among Patients With Cirrhosis
Frailty will be used to assess muscle quality. The liver frailty index (LFI) includes the measurement of grip strength, chair stands, and balance. The Liver Fraity Index typically ranges from 1.0 to 5.0 with the following cut-offs...
Recruiting
Support services
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your condition
- List of your medications, including dosages, plus any you're allergic to
- List of questions you may have
- Device or paper for taking notes
Related clinics
Our research initiatives
-
UCSF Center for Cerebrovascular Research
The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.
