ILD Patient Resources
Support groups
Living With a Lung Disease Support Groups (American Lung Association)
Pulmonary Fibrosis Foundation Support Groups
Resources for specific ILDs
Connective tissue disease-associated ILD
(dermatomyositis, polymyositis, mixed connective tissue disease, granulomatosis with polyangiitis, Sjӧgren's syndrome, scleroderma, sarcoidosis, rheumatoid arthritis, Raynaud's syndrome)
American Autoimmune Related Diseases Association
Scleroderma Foundation
Familial pulmonary fibrosis
National Jewish Health
Christine Garcia, MD, PhD, Columbia University
Idiopathic pulmonary fibrosis (IPF)
Pulmonary Fibrosis Foundation
Lymphangioleiomyomatosis (LAM)
The LAM Foundation
Sarcoidosis
Foundation for Sarcoidosis Research
UCSF Sarcoidosis Research Program
Medication
Mayo Clinic Drugs and Supplements
MedlinePlus Drugs, Herbs and Supplements
Esbriet
Ofev
Conditions associated with ILD
Gastroesophageal reflux disease (GERD)
International Foundation for Functional Gastrointestinal Disorders
MedlinePlus: GERD
Pulmonary hypertension
Pulmonary Hypertension - High Blood Pressure in the Heart-to-Lung System
Pulmonary Hypertension Association
Sleep and sleep apnea
American Sleep Apnea Association
MedlinePlus: Sleep apnea
National Sleep Foundation
Smoking
Tobacco Free California
UCSF Stop Smoking Classes
ILD symptoms and complications
Anxiety and depression
Freedom From Fear
UCSF Osher Center for Integrative Health
Deconditioning
California Society for Pulmonary Rehabilitation
Dyspnea (shortness of breath)
Pulmonary Education and Research Foundation
Better Breathers Club Program (American Lung Association)
Hypoxemia and supplemental oxygen
Emphysema Foundation for Our Right to Survive (focuses on COPD but provides useful information on oxygen equipment, traveling with oxygen, etc.)
Weight loss or gain
Aim for a Healthy Weight, National Heart, Lung, and Blood Institute
Weight Watchers
General lung health information
American Lung Association
National Heart, Lung, and Blood Institute
National Library of Medicine
UpToDate.com
Caregiver support
Resources for financial hardship
MedicaidNational Rehabilitation Information Center
NeedyMeds
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs
Research studies and getting involved
ClinicalTrials.gov
Foundation for Sarcoidosis Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
Scleroderma Foundation
The LAM Foundation
UCSF Interstitial Lung Disease Clinical Research
Lung transplantation
American Society of Transplantation
UCSF Lung Transplant Program
United Network for Organ Sharing
Advance care planning
Recommended reading
FAQ: Cyclophosphamide
Cyclophosphamide is a medication that suppresses the immune response and reduces lung inflammation. Find answers to common cyclophosphamide questions.
FAQ: Methotrexate
Find answers to common questions about methotrexate, an immunosuppressant, including what to know before taking the drug and potential side effects.
FAQ: Mycophenolate
Get answers to questions about mycophenolate, an immunosuppressant, including what to know before taking the drug, side effects and necessary monitoring.
FAQ: Prednisone
Get information about prednisone, a medication to treat lung inflammation, including precautions, side effects and necessary monitoring.
GERD in ILD Patients
Interstitial lung disease (ILD) may be linked to gastroesophageal reflux disease (GERD). Understand the symptoms of GERD, how it’s diagnosed and treatments.
ILD Nutrition Manual
Check out our nutrition guide for people with interstitial lung disease (ILD). Eating well can help prevent infection and keep your respiratory system healthy.
Pulmonary Hypertension and Interstitial Lung Disease
Pulmonary hypertension (PH) is common in patients with interstitial lung disease (ILD). Get information on PH, including diagnosis and treatments.
Pulmonary Rehabilitation for ILD
Our respiratory therapists provide pulmonary (lung) rehabilitation for people with ILD in the Bay Area. We help reduce symptoms and improve quality of life.
Supplemental Oxygen
Explore our comprehensive guide to using supplemental oxygen, including safety information and travel recommendations.
UCSF Health medical specialists have reviewed this information. It is for educational purposes only and is not intended to replace the advice of your doctor or other health care provider. We encourage you to discuss any questions or concerns you may have with your provider.