ILD Program

The UCSF Interstitial Lung Disease (ILD) Program is dedicated to improving the lives of patients with interstitial lung disease, or ILD. We do this by focusing on patient care, education and research, and community building.

The program specializes in the comprehensive care of people with all types of ILD. We provide state-of-the-art diagnosis and treatment recommendations, working as a team to review each case thoroughly so as to optimize disease and symptom management. We communicate directly with patients and their referring doctors to assure continuity of care and appropriate follow-up.

As part of an academic medical center, we are committed to meeting the educational needs of our community. For patients and families, we hold seminars on ILD and offer a support group for anyone affected by this condition, called Living Well With ILD. For doctors and other health care providers, we offer continuing medical education sessions on interstitial lung disease as well as a quarterly newsletter.

Our locations

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    Patient education

    FAQ: Cyclophosphamide

    Cyclophosphamide is part of a class of drugs called immunosuppressants that suppress the immune response and reduces inflammation in the lungs. Learn more.

    FAQ: Methotrexate

    Commonly asked questions regarding Methotrexate including, recommendation, precautions, possible side effects, suggested monitoring and more.

    FAQ: Mycophenolate

    Commonly asked questions regarding Mycophenolate including recommendation, precautions, possible side effects, suggested monitoring and more.

    FAQ: Prednisone

    Commonly asked questions regarding Prednisone including, the reason for recommendation, special precautions, possible side effects, monitoring, and more.

    GERD in ILD Patients

    Many studies have shown a link between GERD & lung disease, including interstitial lung disease (ILD). The reason for this relationship is unclear. Learn more.

    ILD Nutrition Manual

    Nutrition Manual for Interstitial Lung Disease including, General Guidelines for Eating Healthy, Body Mass Index, Increasing Protein in Your Diet and more.

    ILD Resources

    Patients living with interstitial lung disease (ILD) will find numerous resources listed here, offering information and support.

    Pulmonary Hypertension and Interstitial Lung Disease

    Pulmonary hypertension, or PH, occurs when blood pressure in the lungs becomes elevated, and can be caused by a thickening of the pulmonary artery walls.

    Pulmonary Rehabilitation for ILD Patients

    Pulmonary rehabilitation is a comprehensive program for lung disease patients whose symptoms are impacting their everyday activities. Learn more here.

    Supplemental Oxygen

    Find Supplemental Oxygen Resources including, The Need for Supplemental Oxygen, Your Oxygen Equipment, Oxygen Safety, Traveling With Oxygen, and more.

    Decorative Caduceus

    Epigenetic Regulation of Altered T-cell Immunity in Sarcoidosis

    Sarcoidosis is a multi-system granulomatous disorder that is triggered and influenced by gene-environment interactions. Although sarcoidosis predominantly affects the lungs in most cases, the clinical disease course ...

    Recruiting

    Decorative Caduceus

    Trial to Evaluate the Safety and Effectiveness of the Portable Organ Care System (OCS™) Lung Sy...

    To evaluate the safety and effectiveness of the OCS™ Lung System to recruit, preserve and assess non-ideal donor lungs that may not meet current standard donor lung acceptance criteria for transplantation.

    Recruiting

    Decorative Caduceus

    Scleroderma Lung Study III - Combining Pirfenidone With Mycophenolate

    A Phase II multi-center, double-blind, parallel group, randomized and placebo-controlled clinical trial addressing the treatment of patients with active and symptomatic Scleroderma-related interstitial lung disease (...

    Recruiting

    Decorative Caduceus

    A Phase 2 Study to Evaluate the Safety, Biological Activity, and PK of ND-L02-s0201 in Subjects...

    This phase 2 clinical study will be a randomized, double-blind, placebo-controlled, multicenter study to evaluate the safety, tolerability, biological activity, and pharmacokinetics (PK) of ND-L02-s0201 for Injection...

    Recruiting

    Decorative Caduceus

    Pirfenidone for Restrictive Chronic Lung Allograft Dysfunction

    Despite advances in lung transplantation, the median survival remains only 55% at 5 years. The main limitation to long term survival is the development of chronic lung allograft dysfunction. In approximately 30% of c...

    Recruiting

    Decorative Caduceus

    Safety and Efficacy of Inhaled Treprostinil in Adult PH With ILD Including CPFE

    This is a multicenter, randomized (1:1 inhaled treprostinil: placebo), double-blinded, placebo-controlled trial to evaluate the safety and efficacy of inhaled treprostinil in subjects with pre-capillary pulmonary hyp...

    Recruiting

    Awards & recognition

    • usnews-pulmonology

      Best in Northern California for pulmonology and lung surgery

    • n7-2x

      Ranked No. 8 in the nation for pulmonology and lung surgery

    • PFF-2x

      Designated pulmonary fibrosis care center

    • 450-2x

      new patients treated each year

    Support services

    Patient Resource

    Case Management and Social Work

    Connect with a team that can help you find resources, solve problems and advocate for you during treatment at UCSF.

    Class

    Mindfulness-Based Stress Reduction Class

    This eight-week UCSF class teaches mindfulness practices, such as meditation and body awareness, that can reduce stress and improve your overall health.

    Patient Resource

    Patient Relations

    We welcome feedback about your experience at UCSF Health. Find out how to contact us with comments, questions or concerns.

    Support Group

    Pulmonary Support Groups

    The UCSF AWAKE ("Alert, Well And Keeping Energetic") Obstructive Sleep Apnea Support Group is for people with this sleep and breathing disorder.

    Patient Resource

    Spiritual Care Services

    Chaplains representing many faiths are available around the clock to provide support, comfort and counsel to patients, families and caregivers. Learn more.

    International Services

    If you live in another country and are coming to UCSF for medical
    treatment, our patient liaisons can help coordinate all aspects of your visit.

    Learn more

    Interpreters

    UCSF offers language services at no charge for patients with limited
    English, as well as for patients who are deaf or have trouble hearing.

    Learn more

    Hospital Stays

    Checking into the hospital? Find helpful information by clicking on the relevant “Your Hospital Stay” booklet: Mission Bay, Parnassus or Mount
    Zion.

    Learn more
    10 ways to get the most from your doctor visit

    Your Doctor Visit

    See our top 10 tips for making your UCSF doctor’s appointment as stress-free and productive as possible.

    Learn more
    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your condition
    • List of your medications, including dosages, plus any you're allergic to
    • List of questions you may have
    • Device or paper for taking notes

    Related clinics

    Lung Transplant Program

    400 Parnassus Ave., Fifth Floor
    San Francisco, CA 94143

    Our research initiatives

    • Interstitial-Lung-Disease-Research-2x

      Interstitial Lung Disease Research

      UCSF's interstitial lung disease researchers investigate how lung tissue scarring develops and progresses, and evaluate potential new treatments.

    Can't find what you're looking for?

    UCSF Help Center

    (888) 689-8273

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