Neurology & Neurosurgery

Adult Neurofibromatosis Type 1 (NF1) and Schwannomatosis Clinic

(415) 353-7500

The UCSF Adult Neurofibromatosis Type 1 (NF1) and Schwannomatosis Clinic brings together specialists with expertise in treating all kinds of NF1 and schwannomatosis, including neurofibromatosis type 2. Our mission is to provide lifelong care for patients with these complex genetic conditions, which cause noncancerous tumors to form in the nervous system. We work closely with the pediatric NF1 clinic to seamlessly transition patients to adult care.

Our goal is to bring our patients the best possible outcomes and quality of life using the latest technologies and treatments. We provide access to clinical trials (studies of promising new therapies) and are part of the Neurofibromatosis Clinical Trials Consortium, a collaboration among clinical centers that share the goal of improving treatments through clinical trials. We are also part of the UCSF Brain Tumor Center, which has a program that connects patients' caregivers and family members with the resources and support they need.

The Children's Tumor Foundation has recognized us as an NF1 and schwannomatosis comprehensive care center for patients with these conditions.

Our locations (1)

    Conditions we treat

    • Neurofibromas

    • Neurofibromatosis

    • Schwannomas

    • Schwannomatosis

    Our team

    Decorative Caduceus

    Evaluating a Low-Cost Therapeutic Device in Managing Head and Neck Cancer Patients With Radiati...

    The mean change in MIO from baseline to end of treatment at 6 weeks will be reported

    Recruiting

    Decorative Caduceus

    Optic Nerve Stimulation To Prevent Visual Deficits After Endoscopic Cranial Approaches

    Patients that received our intervention will be evaluated post operatively for regular standard of care six weeks post-operatively. During visual evaluation, the PI of this study will determine post-operative visual field and visu...

    Recruiting

    Decorative Caduceus

    Autologous Muscle Derived Cells for Treatment of Tongue Dysphagia

    Safety will be determined by the frequency and severity of adverse events related to study procedures and study product.

    Recruiting

    Decorative Caduceus

    ICG Angiogram as a Predictor of Postoperative Visual Function After EEA Surgery

    The investigators will evaluate the percentage of participants that present with decreased of visual acuity and any modality of visual field defect after the surgery. Postoperative visual acuity and visual field testing will be pe...

    Recruiting

    Decorative Caduceus

    CAB-AXL-ADC Safety and Efficacy Study in Adult and Adolescent Patients With Sarcoma

    Assess dose limiting toxicity as defined in the protocol

    Recruiting

    Decorative Caduceus

    Galcanezumab for Vestibular Migraine

    This is a recently developed and validated outcome measure for vestibular migraine from the investigators. It has been shown to be highly reliable and valid, and responsive to treatment changes. At this point, it is the only disea...

    Recruiting

    Awards & recognition

    • U S News and World Report badge recognizing UCSF as part of its 2024-2025 Honor Roll

      Among the top hospitals in the nation

    • Best in Northern California and No. 7 in the nation for cancer care

    • U S News and World Report badge recognizing UCSF as number 3 in the country for neurology and neurosurgery for 2024 to 2025

      Best in the West and No. 3 in the nation for neurology & neurosurgery

    • n1-2x

      in the U.S. for number of brain tumor patients treated

    Support services

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    Patient Resource

    Case Management & Social Work

    Connect with a team that can help you find resources, solve problems and advocate for you during treatment at UCSF.

    Class

    Mindfulness-Based Stress Reduction Class

    This eight-week class teaches mindfulness practices that can reduce stress and improve your overall health, such as meditation and body awareness.

    Patient Resource

    Patient Relations

    We welcome feedback about your experience at UCSF Health. Find out how to contact us with comments, questions or concerns.

    Patient Resource

    Spiritual Care Services

    Chaplains representing many faiths are available around the clock to provide support, comfort and counsel to patients, families and caregivers.

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your condition
    • List of your medications, including dosages, plus any you're allergic to
    • List of questions you may have
    • Device or paper for taking notes

    International Services

    If you live outside the United States and are coming to UCSF for medical treatment, our patient liaisons can help coordinate all aspects of your visit.

    Learn more

    Interpreting Services

    UCSF offers interpreters in various languages, including American Sign Language (ASL), as well as services for deaf, hard-of-hearing and visually impaired patients.

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    Hospital Stays

    Make your hospital stay as smooth and comfortable as possible by finding out how to prepare and what to expect.

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    Your Doctor Visit

    See our top 10 tips for making your UCSF doctor’s appointment as stress-free and productive as possible.

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    Related clinics

    Neurosurgery Clinic

    See all seven of our locations and learn more about the clinic.

    Brain Tumor Center

    400 Parnassus Ave., Eighth Floor
    San Francisco, CA 94143

    (415) 353-7500
    M-F, 8 a.m. - 5 p.m.

    Do you need pediatric care?

    UCSF Benioff Children's Hospitals
    UCSF Benioff Children's Hospitals

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    (888) 689-8273
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