Neuro-Oncology Caregiver Program

About the Program

At UCSF, we understand that a brain tumor diagnosis affects not only our patients, but also their families and loved ones. To enhance the excellent clinical care we provide, we have established the UCSF Neuro-Oncology Gordon Murray Caregiver Program. Our goal is to optimize quality of life for both the patient and the caregiver by ensuring family members and loved ones have the resources and support they need to feel prepared in their caregiver roles.

The Caregiver Program Team

Susan M. Chang, MD – Medical Director
Margaretta S. Page, MS, RN – Nurse Coordinator
Rosemary Rossi, MSW – Social Worker
Marielle Woodall – Program Coordinator

Services Available

The program supports caregivers by providing information about the disease, access to caregiver resources, and referrals to peer support and professional counseling services.

We commonly advise caregivers on some of the following topics:

  • Disease information, including symptoms, side effects and what to expect
  • Navigating the health care system
  • Financial, disability and insurance information
  • Guidance for completing advanced health care directives
  • Connecting with local and community supportive care resources
  • Caregiver-to-caregiver peer support
  • Educational workshops designed for neuro-oncology caregivers
  • Support groups

If you are the caregiver of a UCSF neuro-oncology patient, please feel free to contact us at (415) 514-5674.

Caregiver Resources

Caregiver Support

Resources for Health Care Providers

Family and Caregiver Events

Other Caregiver Resources

UCSF Neurosurgery Inpatient Caregiver Program

This program is designed to reach caregivers at the time of their loved one's surgery. Our caregiver nurse meets with family members in the hospital to provide valuable health information and beginning instruction on basic caregiver skills. Our aim is to prepare caregivers for taking care of the patient between the time of discharge and the patient's first visit to our neuro-oncology clinic.

Educational Video

This online educational tool highlights recommended tasks to guide caregivers when they go home, particularly in the first two to three weeks after surgery, and offers tips for getting organized. The purpose of the presentation is to improve the patient's transition from the hospital to home and reduce post-operative issues during recovery.

Some topics include:

  • Organizing and administering medications
  • Communicating with the physicians, nurses, social workers and other health care team members
  • Managing and observing the surgical incision
  • Monitoring for medication side effects
  • Addressing potential post-operative complications
  • Knowing when and who to call if questions arise
  • Strategies for getting organized
  • Caregiver self-care

Donations

The caregiver program is philanthropically funded. These services would not be possible without the support of our generous donors. To learn more about the history of our program and how you can support our work, please visit neurosurgery.ucsf.edu.

Related Information

How to Reach Us

UCSF Neuro-Oncology Gordon Murray Caregiver Program
Phone: (415) 514-5674

Related Conditions

Our Team

Manish Kumar Aghi
Dr. Manish Kumar Aghi,
neurosurgeon
Christopher Ames
Dr. Christopher Ames,
neurosurgeon
Mitchel Berger
Dr. Mitchel Berger,
neurosurgeon
Lewis Blevins
Dr. Lewis Blevins,
neuro-endocrinologist
Nicholas Butowski
Dr. Nicholas Butowski,
neuro-oncologist
Susan Chang
Dr. Susan Chang,
neuro-oncologist
Dean Chou
Dr. Dean Chou,
neurosurgeon
Jennifer Clarke
Dr. Jennifer Clarke,
neuro-oncologist
Sandeep Kunwar
Dr. Sandeep Kunwar,
neurosurgeon
Michael McDermott
Dr. Michael McDermott,
neurosurgeon
Jean Nakamura
Dr. Jean Nakamura,
radiation oncologist
Michael D. Prados
Dr. Michael D. Prados,
neuro-oncologist
Patricia Sneed
Dr. Patricia Sneed,
radiation oncologist
Philip Theodosopoulos
Margaretta Page
Margaretta Page,
clinical nurse specialist
Jane Rabbitt
Jane Rabbitt,
clinical nurse specialist
Rosemary Rossi
Rosemary Rossi,
social worker